Lulu

Lulu was diagnosed in 2014 at age 5 with Acute Lymphoblastic Leukemia (ALL). After her initial treatment she didn’t reach remission, so she was given the title High Risk ALL, placing her on a more intense protocol. 

Nine days after she started treatment, her blood pressure reached 170/100 and she didn’t wake up. She was rushed to the ICU. Later, the neurologist told us she wasn’t responding to any stimulation. My friend and I rushed to her bedside, promising a ventilated Lulu ponies and pets if she would just wake up. Pinching her hands and feet, we got a wiggle in her toe. She lost her eyesight for a few days, but she made it off the ventilator and we had our girl back. 

Imagine being told to wash your cantaloupe in bleach to kill bacteria before cutting it, or mixing your Miralax with orange soda. Eventually I’d had enough. I wanted her to survive, and while looking for help I found MaxLove Project. Immediately we were welcomed into a group of “our” people. We were given a thrive box, refilling our hearts with hope that Lulu could beat this and I could support her along the way. I got rid of the statistic in my head that Lulu had an 85% chance of surviving the next five years, because MaxLove said, “Statistics aren’t your destiny.”

Lulu may not remember much of her treatment, but she’ll tell you about riding around a farm and eating the best veggies. That was because of MaxLove. Audra would share nutrient-dense keto recipes, I would hide mushrooms in the meal, and Lulu now loves mushrooms. They introduced me to mindfulness. Game changer! You want science? They have all the studies. 

Finally, the best is their BE SUPER 7-point action plan: a guide to helping your child thrive is on a quick infographic. In the beginning it was all overwhelming, but we were encouraged and supported, and six years later Lulu and our family are so much happier because of all that we’ve learned and more importantly continue to learn from MaxLove Project. — Tiffanie, Lulu’s Mom